JPGN 2013; 57: 451-60. “Assessment and Management of Nutrition and Growth in Rett Syndrome”
- This references expert recommendations from an international multidisciplinary panel. “The level of evidence for the statements was low.”
- “A body mass index of approximately the 25% can be considered a reasonable target in clinical practice. Gastrostomy is indicated for extremely poor growth, if there is risk of aspiratrion and if feeding times are prolonged.”
- There was no consensus with regard to fundoplication. It should be used with “caution in those with significant air swallowing.”
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