A Foster et al. J Pediatr 2023; 258: 113403. Transition Readiness in Youth with Inflammatory Bowel Disease
In this cross-sectional multicenter study evaluating transition readiness in individuals (n=186, prospectively recruited ) with IBD 16-19 years old, the authors used the validated ON Taking Responsibility for Adolescent to Adult Care (ON TRAC) questionnaire.
Key findings:
- ON TRAC scores determined that 26.6% of AYAs at pediatric and 40.4% at adult centers reached the threshold of readiness. The findings are limited by potential nonresponse & sampling bias.
- Disease remission negatively (P = .03) associated with ON TRAC scores.
- A significant percentage of AYAs reported moderate-to-severe depression (21.7%) and generalized anxiety (36%); however, neither were significantly associated with ON TRAC scores
The authors suggest that a joint clinic with adult/pediatric providers may be helpful to improve transition.
MB Cohen. J Pediatr 2023; 258. DOI:https://doi.org/10.1016/j.jpeds.2023.113556 Are You Ready to Transition? In commentary on this article, Dr. Cohen writes the following: “a novel finding was that transition readiness was inversely related to disease remission; this confirms what had been previously suggested.1 Patients who are doing well may not be as engaged in developing skills for transition readiness and knowledge about their chronic illness, unlike those with more significant disease or symptoms.”
My take: Many studies show that adolescents and young adults with IBD are not fully prepared to transition to adult medical practices. In my view, it would be better to encourage the young adult to continue engaging with his/her parents until readiness is achieved rather than try to change to a multispecialty clinic.
Related blog posts:
- Challenging Assumptions: Self-Management Skills in Adolescents and Poor Outcomes (provides detailed list of tasks needed for self-management). In this transition study of liver transplant patients, negative outcomes were more common in adolescents who reported greater self-management (RA Annunziato et al. J Pediatr 2018; 193: 128-33).
- Working on Transition Readiness
- Suboptimal Transitions: Pediatric to Adult Care
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